Good old lupus

Well, survived acute bronchitis, again. But barely.

The Cough of Doom is finally gone. Am almost, but not quite, finished with the prednisone withdrawal. I need to get down to 5 mg/day like I was before (wish I could be at 0...sigh. Am on 10/day now. Not so hot considering I have diabetes and osteopenia and AVN already...and have a history of steroid-induced high ocular pressure with glaucoma in the family.)

I got excited that is was summer -- formerly my worst season, but now I know I have to avoid sun and heat, and the horrible and strange colds and flu which have plagued where I live through the cooler months are now gone. However, I immediately overdid it. We needed to put a twin bed in our place so my mom can sleep over here sometimes. There are still a ton of books etc. that now need to be put away, but my body has gone on strike. Today I was crippled by joint pains and overwhleming fatigue. I keep falling asleep wherever I find myself. Exhausted. It was Tuesday we did the heavy work; I had aches and pains and was very tired yesterday, but worse today with some pain on breathing so I know it's SLE rearing its ugly little head.

It was a huge job to write this short entry! Everything feels soooooo difficult. I have one eye which I am trying to force open so I don't fall asleep but this is not working. zzzzzzzz.

Woke up, got out of bed, dragged a comb across my head...

and there the similarity to the Beatles song ends :)

I am having trouble breathing today. And it hurts to breathe. I've also got a nice big shiny RED clown-face lupus "butterfly" rash. I'm trying this new makeup I got from Clinique to guinea pig for my support group. It's green. Supposed to reduce red. I think it did a bit, but I may just have to look like I just stepped out of a sauna on this actually cool day...

And I've got joint and muscle aches, and am very tired, so probably won't be seen by people except those at the pharmacy and at wherever dburr wants to go for errands, anyway !

Out cold

Lupus has caught up with me again. I think I fell asleep around 4 pm, woke up around 9 pm for a very short time, and woke up again now at midnight...and I'm not going to be awake long.

Of course my rosy cheeks look so healthy!

It's my hair that looks bad. I need to have it done but medical crap has put me $$$ in debt again.

I'm in a good mood today, but...

the lupus isn't. Don't know why it felt like it had to kick my behind, but it's not telling me. Joint pains, pain with breathing, muscle weakness, exhaustion. Of course, could be worse!