Wednesday, April 29, 2009

Swine Flu Info

I really wanted to cut and paste the blog entry I made on another blog to here, but I am so tired I would screw it up! So here is the current info I have. I will be posting more on what the immunosuppressed (like those of us taking immunosuppressants for autoimmune disease) should do when I find out.

Tuesday, April 28, 2009

Today's Half Awake Words

I am so tired. I fell asleep really late last night and for some reason there were a million phone calls waking me up this am.

I've decided to make this blog my only lupus blog for now. I can't handle more than one lupus blog! It is hard enough to try to keep up on one.

There will be a support group meeting tonight. I lead the group and have to prepare. I want to bring some current swine flu info. I'm sure people are nervous about it.

I have a nasty cough. I did have a flu, gone now, but this is my usual dry wheezing cough that I get after any respiratory infection. It has something to do with the asthma and although I'm hoping to avoid extra steroids it will probably come to that to get rid of it.

My asthma is NOT contagious...

Wednesday, April 22, 2009

Now this is JUST TOO MUCH

Ok, found the last Maxalt samples (why won't my insurance give me Maxalt?) and the new nausea med; got the migraine to be a bit better by taking the meds and also restricting myself to lying down in a quiet and dimly lit room.

But no rest for the wicked, I mean the sick that is...I'm kind of dizzy so had dburr help me take my blood sugar. 290! Oops.

Now I have to try and walk around the house WITH a migraine and drink a boatload of water. And not much of the pasta dinner for my sick tummy. Got to bring that sugar down. Maybe pickles will help. Not that I feel like having any.

Have some kind of infection, too. Productive cough, although not a really bad one.

This is really too many illnesses at once and I'm getting kind of pissed off.

Got my latest blood work in the mail. Sed rate is good (I do not understand WHY because I have not been doing so well with the arthritis)...but ANA is back up. Not to its highest but 1:1280 is significant. Blah.

Would someone please give lupus the finger for me? I had to stab both of my middle fingers today in the great effort to get blood for testing blood sugar level. I've got Raynaud's. Hands and feet usually cold and lifeless. Doesn't go well with diabetes test kit requirements.

Poor dburr ; he has to be Nurse Dburr again. I can't be fun to live with.

Reminder to Self

Put today in the Headache Diary for my neuro.

At least he cares when I get these nauseating, blinding migraines.

I had so much I was looking forward to doing today and it is just. not. fair.


About Me

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I've travelled the distance from an Ivy League college to decades of enforced poverty--because I've needed to qualify for government health care in the U.S., since being diagnosed with lupus at the age of 23. I have a personal blog at that I've had so long I'm probably stuck with :) My other blogs are here on blogger...