Thursday, March 11, 2010

LFA's Lupus Advocacy Day March 16, 2010

The Lupus Foundation of America is sponsoring an Advocacy Day on March 16.

The website for the event is HERE and lets you know what to do to get involved.

In my opinion, the website makes a strong case for why we should all be participating--along with those who care about us who have lupus!
Quoted from the site:

If you can’t join us on Capitol Hill for LFA’s Advocacy Day, there are still lots of ways you can band together for lupus and make your voice heard.

Tell Congress We Need Increased Federal Funding to Bridge the Gaps in Lupus Research, Awareness, and Education. Here's Why.

  • It has been 51 years since the U.S. Food and Drug Administration approved a drug for lupus. Current therapies have unacceptable side effects that can be worse than the disease.
  • Research has consistently shown that 80 percent of young women say they know little or nothing about lupus.
  • According to surveys of people with lupus they experience symptoms for four years and visit three or more doctors before receiving an accurate diagnosis of lupus. Early diagnosis is critical to preventing the life-threatening consequences of the disease."

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About Me

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I've travelled the distance from an Ivy League college to decades of enforced poverty--because I've needed to qualify for government health care in the U.S., since being diagnosed with lupus at the age of 23. I have a personal blog at that I've had so long I'm probably stuck with :) My other blogs are here on blogger...