One of the things which happens when I'm experiencing cognitive impairment from lupus is that my short-term memory basically takes a vacation. One day the sweet guy I live with, D, made a big mistake and erased the phone message of a medical appointment for which I had totally forgotten the time. I showed up too late to be seen and was charged a fee for the missed appointment. Also the new appointment was very hard to schedule. Well D had naturally assumed that with both a computer calendar and a calendar I carry in my purse and the little cards the receptionists give you when you make a medical appointment were more than enough for me to be able to show up on time. But with lupus brain, I could not remember the time. I had not written it down in clear handwriting due to an arthritis attack. I couldn't remember where my appointment card was. I forgot to enter it on the computer.
Today I came home from an out-of-town dentist appointment very tired and worried about a lot of things I really have to do and was so glad that tomorrow would be a day at home. Also I wanted to rest before the appointment I made to continue to participate in the study which is now tracking my very low B cell count which was a response to the treatment in the study.
But no one erased the phone messages this time. It seems I have one appointment out of town tomorrow and one in a different city from the study appointment on Thursday. I don't know how this is going to sort out but at least I now know I screwed up. My memory? Totally blank on all of the appointments. If they weren't written down I wouldn't remember any of them. Admittedly I have a lot more medical appointments than most people and it is relatively easy to make mistakes. But it's the lupus brain stuff, when I have it going on, that just wipes the memory slate and leaves me without a clue regarding where I'm supposed to be when.
I used to worry, when I was in my twenties, that I had Alzheimer's...except mine comes and goes...