It's not easy in CA with a serious or chronic illness any more. This budget process itself is getting sicker than any of us are, IMHO.
Please take action if you are a CA resident--or ask any CA residents you know to read, sign, and pass on:
CA Budget Crisis: Murder Is Not An Option
I don't think it's easy for any of us anywhere who suffer with a chronic illness. Especially one with so few drug treatments. I believe we who suffer with such diseases are definatley the forgotten ones at the end of the day. I feel bad for those who do not have coverage of any kind and go without with little treatment than can obtain.
ReplyDeleteI know of people who have even died needlessly, due to lack of coverage, and sometimes I am just astounded that this is reality--it must be some kind of bad dream, that not enough people who have the power to change things have cared enough about anyone except themselves to do so. I can't imagine chronic illness anywhere is a picnic; I'm sure it is always a huge challenge that hits in every area of life.
ReplyDeleteBut I can report that having a chronic disease which is expensive to treat while having fallen through many of the gaping cavernous holes in the U.S. "safety net" is -- life-threatening, all the time. I've been fighting for my life 24/7 for 23 years. I'm exhausted. I guess if they can't kill us they just wear us out. I'm expendable, and I know it, because so many people come right out and tell me so! And I just wonder how well any of them would do, sick or well, if put under a spotlight and commanded: "You. Yes, you! Justify your existence."
I'm not sure why so few drugs have been approved for lupus. It's something I would really like to know a lot more about.
(((hugs))) I hope you are doing ok.